National Cerebral Palsy Awareness Day

March 25, 2025

In honor of National Cerebral Palsy Awareness Day, we spoke to Melissa Taylor, our CT LEND trainee.

Melissa is a self-advocate who shares her experiences as a person with a disability. Melissa tells us what self-advocacy means to her, why it is important, and how her LEND experience has been beneficial!

Advocacy Rally at the Connecticut State Capitol

March 24, 2025

March 18th was Medicaid Day of Action, a nationwide event that urged us to stand up and speak out against proposed Medicaid cuts that would devastate our most vulnerable neighbors. Thousands rallied at the Connecticut State Capitol to raise their voices, because it’s not about numbers — it’s about people.

One powerful voice, Melissa Thompson, who relies on Medicaid for her disability needs, reminded us of what’s at stake. CT State Comptroller Sean Scanlon said it best: “They are using their agendas to take our country back to a time when we let the most vulnerable in our society be completely and utterly neglected.”

With the 60th anniversary of Medicaid approaching, the urgency is clear. Congress is proposing $80 billion in cuts — that’s $880 million lost for Connecticut, threatening healthcare for 900,000 CT residents, including pregnant people, seniors in nursing homes, and individuals with disabilities — our friends, family, and loved ones.

Thank you to Rep. Joe Courtney, Rep. John Larson, Rep. Rosa DeLauro, Senator Blumenthal, Senator Murphy, Lt Governor Susan Bysiewicz, and Governor Lamont — we need your continued leadership now more than ever. We’re counting on you.

March 21st is World Down Syndrome Day

March 21, 2025

The UConn UCEDD staff rocked some mismatched socks today in honor of World Down Syndrome Day!
People wear mismatched socks on World Down Syndrome Day because chromosomes are sock-shaped and the karyotype of Down syndrome chromosomes looks like mismatched socks!

New Study Finds Gap in Tools Assessing Emotional Well-Being in Individuals with Intellectual Disabilities

March 11, 2025

A new study from the UConn Neag School of Education has found significant gaps in how emotional well-being is measured in children and adolescents with intellectual disabilities.

The authors explored which areas of emotional well-being are assessed in individuals with intellectual disabilities. They found that most items assessing emotional well-being only focused on the quality of everyday experiences or life satisfaction and few items focused on the ability to pursue goals, which is a well-being component linked to better long-term outcomes.

March is Developmental Disabilities Awareness Month

March 3, 2025

March is 31 days. But having a disability? 24/7, 365.

The UConn UCEDD is excited to kick off March supporting the National Association of Councils on Developmental Disabilities’ Developmental Disabilities Awareness month theme, “We’re Here All Year.” Community, accessibility, and opportunities for people with developmental disabilities should be recognized and championed every day—not just in March.

Join us in supporting individuals with developmental disabilities across the state of Connecticut through advocacy, empowerment, and inclusion.

CT State Independent Living Council Supported Decision-Making Webinar Series

February 6, 2025

Join the CT State Independent Living Council and the Supported Decision-Making Coalition for their Supported Decision-Making Four-Part Webinar Series! This informative series of webinars will be presented by Jonathan Martinis.

Webinar 1: Introduction and Discussion
Date: February 20, 2025
Time: 6:00 PM – 7:30 PM
Basics of Supported Decision-Making and discussion about how it works.
Register for this event here.

Webinar 2: Special Education and the Transition Process
Date: March 6, 2025
Time: 6:00 PM – 7:30 PM
Using Supported Decision-Making in special education and the transition process.
Register for this event here.

Webinar 3: Vocational Rehabilitation
Date: March 20, 2025
Time: 6:00 PM – 7:30 PM
Supported Decision-Making and its uses with vocational rehabilitation.
Register for this event here.

Webinar 4: Health and Lifestyle Choices
Date: April 3, 2025
Time: 6:00 PM – 7:30 PM
How Supported Decision-Making can assist in making informed health and lifestyle decisions.
Register for this event here.

National Preschool Health and Fitness Day

January 31, 2025

Happy National Preschool Health and Fitness Day! Teaching little ones healthy habits is so important for their physical and social development.

Need some ideas for physical activities for your preschooler?

The Special Olympics Young Athletes app gives personalized activities based on your child’s development and allows access to other health resources. Learn more about Young Athletes by clicking here!

President Biden Honors Dr. Linda Barry

January 16, 2025

Conn School of Medicine’s Dr. Linda Barry has been prestigiously recognized by U.S. President Joseph Biden with the Presidential Award for Excellence in Science, Mathematics and Engineering Mentoring (PAESMEM). It is the nation’s highest honor that mentors can receive.

Dr. Barry is a professor in the Department of Surgery and the Department of Public Health Sciences at UConn School of Medicine, serves as associate director of the UConn Health Disparities Institute and associate dean of the Office of Multicultural and Community Affairs, and is a member of our Consumer Advisory Council.

To read more about Dr. Barry’s award, click here.

Think Differently Database Act Signed Into Law

January 14, 2025

On January 4, President Biden signed the Think Differently Database Act (H.R. 670) into law. This bipartisan legislation—sponsored by Representatives Marc Molinaro (R-NY) and Mikie Sherrill (D-NJ) in the House and Senators Eric Schmitt (R-MO) and Jon Ossoff (D-GA) in the Senate—will create a comprehensive, national website database of support services and resources for people with disabilities in every state.

To read the bill, click here.

President Biden Signs Autism CARES Act of 2024 into Law

January 2, 2025

President Biden has signed into law the bipartisan Autism Collaboration, Accountability, Research, Education and Support Act, or Autism CARES Act of 2024.

The Autism CARES Act is the most comprehensive federal law addressing the urgent needs of children, adolescents, and adults with autism. Over its 17-year history, this law has resulted in a significant increase in our understanding of autism and related neurodevelopmental disabilities. The CARES Act is crucial to maintaining and improving the monitoring, training, and research programs focused on improving the lives of children and adults with autism and other neurodevelopmental disabilities, and their families.

Click here to read more about this.