The Ethical Case for Having a Baby With Down Syndrome

April 17, 2018

Written by: New York Times Op-Ed Contributor Dr. Chris Kaposy, who is a bioethicist

My wife’s ultrasound turned up something abnormal in the baby’s heart — an otherwise innocuous feature that correlates with genetic conditions such as Down syndrome. A series of tests confirmed that our son indeed had Down syndrome. We were given the option of abortion, but my wife, Jan, already regarded him as our baby, and a few months later Aaron was born. (more…)

A Promising Jobs Program Cries Out for Expansion

April 4, 2018

By Josh Kovner, Hartford Courant

The leader of a group serving people with intellectual disabilities in the Farmington Valley told Sen. Ted Kennedy Jr. and other legislators on Tuesday about an internship program that so far has developed about 20 motivated workers, all of whom have gotten jobs at competitive wages.

Stephen Morris, executive director of The Arc of Farmington Valley, had struck a chord, making it plain that this training course, called Project Search, differs markedly from others because it takes place inside a host business and stresses independent, mainstream work, rather than group employment. (more…)

Breakfast in the Legislative Office Building

February 22, 2018

The UConn University Center for Excellence in Developmental Disabilities (UCEDD) joined sister agencies of the CT Developmental Disabilities Network (DD Network) at a legislative breakfast in the Legislative Office building on 2/21/18. (more…)

Paralyzed Student Experiences Burning Man Through VR

November 6, 2017

Musical theatre student Evan W. Gadda has heard stories about Burning Man but hasn’t made the journey himself. He is asthmatic. and because of cerebral palsy, paralyzed and confined to a wheelchair, so making the trip to Black Rock City has been deemed impossible, until now. Through a HTC Vive VR headset, he was able to attend the desert event virtually. (more…)

New Cooperative Agreement to Improve Early Childhood Workforce Development

October 4, 2017

The Early Childhood Personnel Center (ECPC), funded by the Office of Special Education and Rehabilitation Services, Department of Education, will continue and build on the work of the current Early Childhood Personnel Center to increase the capacity of State IDEA Part C and B/619 administrators, along with administrators in other early childhood service sectors and early childhood faculty teaching at institutions of higher education to improve outcomes for young children with disabilities and their families across the country. (more…)

The Police Need to Understand Autism

September 21, 2017

By Steve Silberman

Diane Craglow was caring for a 14-year-old autistic boy named Connor Leibel in Buckeye, Ariz., one day in July. They took a walk to one of his favorite places, a park in an upscale community called Verrado. She was not hesitant to leave Connor alone for a few minutes while she booked a piano lesson for his sister nearby, because he usually feels safe and comfortable in places that are familiar to him, and he learns to be more independent that way.

When Ms. Craglow returned, she couldn’t believe what she saw: a police officer looming over the now-handcuffed boy, pinning him to the ground against a tree. Connor was screaming, and the police officer, David Grossman, seemed extremely agitated. (more…)

Our Daughters at Mercy of Stalled Connecticut Budget

September 13, 2017

By Adrienne Benjamin and Arlene Reith

We are two moms who met recently and although we are different in many ways — one a Republican and one a Democrat — we share a deep bond.

Our daughters, Sarah and Zoe, have never met but have a lot in common. They are 21-year-old women who have severe intellectual disabilities and autism. They just graduated from their school programs. But their graduation has not brought celebration.

The lack of a state budget is not an abstraction for our families. It means no funding for the daily program our girls urgently need. The Department of Developmental Services offers programs with structure, activities and goals to work toward. Our daughters are among the 330 new graduates who are waiting for the funding of these core services. They have waited more than two months so far. (more…)

No More Free Parking in Hartford for Accessible Permit Holders

September 6, 2017

By Cyrus Dos Santos – September 1, 2017

HARTFORD, CT — The capital city will no longer offer free metered parking for commuters with disabilities starting today.

But the head of the Hartford Parking Authority said it’s not about increasing revenues for a city flirting with bankruptcy.

“It’s too difficult to determine if a valid permit is used validly,” Hartford Parking Authority CEO Eric Boone said Wednesday. He also stated that current laws make enforcing violations extremely difficult.

According to a Hartford Parking Authority website, one in six vehicles at a meter displays an accessible parking permit. The website goes on to say this indicates that “there is a significant amount of permit abuse.” (more…)

Charlottesville: A Message to the UConn Community

August 18, 2017

To the UConn Community,

Last weekend, the world watched in horrified shock as scenes of brutality fueled by racist, hate-fueled ideologies played out in the town of Charlottesville, Va., home of one of our country’s greatest public universities. By the end of the day Saturday, three people were dead: two Virginia state troopers who had been monitoring the march from a helicopter, and a peaceful protester who had come to courageously bear witness against the noxious philosophy of white supremacy.

As our nation struggled to process these horrific events, we learned that groups motivated by the despicable ideologies of fascism and racism are planning more such rallies, particularly targeting public universities as symbols of all that they most despise: diversity, inclusion, and a relentless pursuit of the truth.

Let me be very clear: as a university, we are committed to fearless intellectual debate and to the free speech that makes it possible. Those commitments are essential to another elemental aspect of our identity, which is our determination to create an intellectual community composed of dignity, compassion, and respect, which constitute the foundation of a free society. (more…)